Sunday, April 23, 2006

We are busy finalizing the plans for Melissa's fundraiser. Only 14 days till the fundraiser. Most of the things that we have found to help her come out of our pocket for expense. I have to say so far we have been so blessed Melissa has had so many doors opened for her-I know we are doing what is right for her. So many people have been so good to our family. Thank you!
I have to say thank you to Sara without her we would not have this awesome website! Thank you Sara!
Melissa had several times this week when she laughed! So sweet. Her therapist commented that they went the longest amount of time without Melissa putting her hands in her mouth-25 minutes. She is eating table foods and about two months ago we were just beginning to transition her from baby food to chopped up food. She is trying to give herself more oral stimulation trying to chew on anything near her mouth. Next we need to get her to be able to bring things to her mouth with her hands. She has started straightening out her arms and is putting some weight on her hands while on her tummy.

Wednesday, April 12, 2006

We'll I'm happy to say that Melissa went 8 days seizure free! She has had some again but, not as often or as hard. Life with a special needs child has many ups and downs. Sometimes we go two steps forward and one step back and other times we go two steps forward and three steps back. I just keep reminding myself how far she has come in the last year. A year ago she was not in there I'm not sure if it was the side effects of the drugs or how compromised her health was but here little eyes were lifeless. Now her eyes shine! and when she smiles (which I always wish was more) her whole face shines! A year ago she couldn't even hold up her head now she has complete forward control! A year ago she couldn't even straiten her legs if there was any weight on them now she can push her body up with her feet and hold it for about 10 seconds! She has rolled over six time since Nov. The other day we got her giggling for over a minute-that was the first time we got giggles like that out of her-it's so much fun! There are so many other things I could just go on and on and I'm sure I will cover them all at some point. We continue to research for ways to help Melissa and we have begun to get a great network of people who truly care about Melissa for that we are truly grateful. We are so blessed to have Melissa we continue to learn each and every day just how blessed we are.