Friday, October 27, 2006

Melissa is still seizure free!!!!!!!!!! We are so excited! If anyone is interested in the Goji Juice you can order it at www.alainakerkhove.freelife.com We really feel like that has played such a role in the ending of her seizures.

She has been very challanging the last several weeks as so many things are changing for her and we feel like what she wants and needs is constantly changing(this is a good thing) although very trying.

She has rolled over several times in the last couple weeks although I feel like she is just teasing us as several times she has rolled over in one week and then not rolled over again for several months. One of these days she is going to roll and not stop that is why this website is called hope4melissa because I know she will do it!

I can't minimize the fact that having a special needs child takes alot of energy and patience to which I am constantly reminding myself I can do it and she will do. She has come so far the fact that she is still with us says so much in and of itself!

She is not sleeping well which is very wearing on me and even dad on the nights I'm just too tired to deal with it.

Melissa has taught me that what I thought I could handle is not as near as I'm able. She has also taught me that when I thought I knew alot she has taught me so much more.

My prayer is that this website can be a blessing to countless other families. To be a source of inspriation and information that was not avalable to us when we first started our journey.

Monday, October 02, 2006

I am very happy to say Melissa is 41 days with only one cluster of seizures and 30 days with no seizures!!!!

She got really sick in Aug and that is when the seizures quite. I'm not sure exactly what did it as we did many different things for her in Aug. We did up her Goji when she was sick though and that is when the seizures quit so I'm guessing that that has played a big roll in the no seizures so I have continued to give her more a day. We also started seeing a new chiropractor and did a week of crainal sacral therapy on her.

She got ankle and foot orthotics(braces for her ankles and feet).Lois her Physical Therapist(pt) calls them Barbies braces as Melissa still wears a size 1 infants shoes. She has got to have about the smallest braces made.
We also got a stander for her that we are bowowing from Children Care Hospital and School which is where Melissa's physical therapists and occupational therapist come from. The braces are to help her so that when she is in a standing position she doesn't roll her feet out like she was doing. So far she loves to be in the stander an can handle it for about 30 minutes at a time.

Everyday she is walking herself around in circles when she is laying on the floor on her back. Last week she grabbed one of the toys off her gym pulled it off and bopped herself in the face with it! She was so mad as she has never done that before.

We are so excited at the changes we are seeing in her.